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The Leukemia & Lymphoma Society
By Katrina McDowell on Oct 16, 2023 in Giving
Yardi is committed to supporting the community in every city where our offices are housed. Each year, the company distributes philanthropic aid to organizations selected by its employees.
In 2022, Yardi offices supported more than 350 nonprofits worldwide. For the remainder of the year, we will bring you the stories of those organizations and insight into how they aid their communities.
Today, we introduce The Leukemia & Lymphoma Society (LLS), founded in 1949 in Rye Brook, New York, impacting the cancer community. LLS is the world’s largest voluntary nonprofit health organization that funds blood cancer research and provides education and patient services. Since 1949, LLS has invested nearly $1.6 billion in groundbreaking research, pioneering many of today’s most innovative approaches.
“We work tirelessly to find cures and ensure patients can access the lifesaving treatments they need. When someone experiences the fear and uncertainty of a cancer diagnosis, we provide hope, compassion, education and support,” said Becca Gregory, campaign development director for LLS.
LLS is starting a new project called The Dare to Dream Project—a new phase for the Children’s Initiative. LLS recognizes kids are different, and their blood cancers must be treated differently, so they hope to change the standard of treatment and care for pediatric blood cancers. LLS has funded the first-ever pediatric AML Data Commons. This platform ensures consistency in global data reporting—and launched the first-ever acute leukemia LLS PedAL Master Clinical Trial, matching patients to treatment based on their cancer’s unique tumor biology.
“Our dream is to help as many children as possible get treatment for their cancer. We’re daring to improve the quality of life for every child with blood cancer, daring to dream of them thriving. And we’re just getting started,” exclaims Gregory!
Funding from Yardi helps support research, education, policy and advocacy. LLS is committed to providing information, resources and support to those affected by blood cancers. Offerings include:
“We are so grateful for the amazing support we are receiving from Yardi,” says Gregory. “It will truly make a difference in the lives of our patients!”
Making a Difference
The Leukemia & Lymphoma Society has made a tremendous difference in the community, and its advocates sent more than 33,900 letters to lawmakers in 2022. Nationwide, they have helped patients all over. In Minnesota, LLS led a coalition whose efforts resulted in a new state law making drug copays more affordable. In the Cleveland market just last year, LLS had 950 patients who received $9,190,000 financial assistance through the Co-Pay Assistance Program.
After hundreds of meetings and thousands of letters from LLS advocates, congress passed the landmark Childhood Cancer STAR Reauthorization Act, which LLS helped write. The law expands opportunities for children’s cancer research, including survivorship research. Education and Services served 2,166 patient households in the Cleveland market.
Some services are not accessible for some patients. However, LLS helped to make clinical trials more accessible. 66 patients in the state of Ohio received $33,000 in financial assistance through local travel assistance programs. LLS helped secure landmark policies enabling more patients—including underrepresented—to access treatments. Trial sponsors will now be accountable for diversity targets, and patients should have access to trial services closer to home.
And in New York and California, LLS has generated momentum for a successful passage, ensuring millions have in-network access to top cancer centers. Thus ensuring robust provider networks.
Volunteer Opportunities
LLS always seeks volunteers for event days and the Light The Night event. If interested, please get in touch with [email protected].
Find future non-profit profiles at https://www.yardi.com/blog/category/giving
